Going Home Today!

We are so glad to be going home! This is the first night we will all have been together under one roof at night for 12 days. When Brett got home he just stared around at the house, almost as if it was all coming back to him now. Glad that whole sick-on-vacation fiasco is over. As for Brett, we will go back to the doctor 10 days from now on March 22. The great news about Brett is that he is back up to 20 pounds as of leaving the hospital today!! Weight gain is crucial in managing CF effectively, and he is only 2 pounds lighter than Gantt now (for months and months it was always a 5 pound difference). Although they are almost the same weight, it is amazing the difference in how that weight is distributed. Brett definitely feels heavier when you pick him up, because his body is smaller. He's more "dense," let's say. Gantt is tall and thin and feels lighter in a way. Interesting.

The not-so-good news is that Brett continued to require oxygen, so we must start home oxygen therapy for now. He's on .3 liters per minute, and during the day I can wean him off as long as his sats stay above 92%. We will also keep the pulse oximeter recording his sats 24 hours a day if we can so that the doctors will have a good 10 days of information to analyze. Now instead of one "cord" he's connected to all the time (g-tube connected to feeding bag), we are going to have up to 4 cords at once. G-tube, oxygen, pulse ox, and finally the broviac line if a medicine is being administered at that time. I wonder how that's going to work with a busy crawler who is attracted to cords like a magnet? Not well, I assume!

But for now, happy to be home sweet home.