Friday, December 9, 2011

Bronch Day

Today was  bronch day for little Brett. His most recent bronchoscopy was over a year ago. Today's bronch was successful in that everything was done safely with the procedure; however, the doctors saw plenty of secretions and inflammation in his airways that suggest infection and the need to treat with a course of IV antibiotics.

The hospital is full right now, so the plan was originally to do the bronch, take labs, and place a PICC line and send him home until a bed opened. This was acceptable because we have had plenty of experience with caring for and maintaining central lines in Brett. Unfortunately, after 2 attempts, the sedation team was unsuccessful in placing the PICC line. That means that surgery will have to get involved.

The cutest thing today was when Brett didn't  mind getting into the gown but demanded that we put back on his socks and shoes! He wore them the whole time - maybe it made him feel more secure and brave...


This is how he feels when awakening from sedation - probably like he's been hit by a ton of bricks!

Eating crackers, feeling a bit better, and saying over and over "Go home, go home!" I'm glad we were able to.

Since Brett's case is not an emergency, the surgery to place a Broviac central catheter has been scheduled for next Monday, and a bed request has also been placed so hopefully he will be able to be admitted right away after the procedure. This scenario is not such a bad thing for 2 reasons - first, not much happens at the hospital over the weekend and now we can spend it at home with the family, and also the cultures taken during the bronch will have a chance to grow and we can target the pathogens more specifically with the most effective antibiotics. Of course, not every area of the lungs can be cultured, so we pray that the cultures that were taken are indicative of what is really going on in Brett's lungs.



Thursday, December 8, 2011

11/30 and 12/8 Appointments

Brett had a routine clinic visit in Chapel Hill last Thursday, and we discussed various options of treatment for his cough, recent gastrointestinal issues, failure to thrive, and general behavior suggesting that he feels bad.

After talking with Dr. Esther I felt as though we would wait until January and then do a bronchoscopy (what we call a "bronch") to see what his lungs look like. But then over the weekend his cough got worse and more frequent. Also he just acted as I he felt bad, which is often our most important indicator. He just doesn't smile very much, and basically just wants to be held, or sit and watch tv, or sleep. His favorite being all of the above!

Therefore, we decided to call Monday and see about getting him in for the bronchoscopy this week. Today in Raleigh we saw Brett's immunologist, Dr. Hernandez. This was also a scheduled visit, and it just happened that Dr. Esther was there as well. It is always helpful to have any of Brett's specialists in the same room to talk and make sure they are all on the same page as far as treatment. Because Dr. Esther was there I went ahead and signed all the consent papers for the bronch tomorrow in Chapel Hill.

The plan is to do the bronch, place a PICC line, and admit him for his 14th hospitalization. He has not had IV antibiotics in 11 months--that's quite a long time in Brett's world. If for some reason his lungs appear awesome-clear of secretions, infection, and inflammation, we will just come home and await the culture results from the bronch to decide on treatment.

Gantt and Brett playing at the Pediatrician's office

In other news, Gantt is sick as well with some sort of stomach illness. Trying to take care of him and get him better at the same time. Luckily, none of the rest of us have gotten sick yet!

Wednesday, December 7, 2011

Trying This out

I'm trying out the blogger app to see how well it works for me to post from my phone.