Brett saw his immunologist today at her satellite office in Raleigh. Not much to report - she wants to get a variety of blood tests done before his infusion this Friday. This is fine, except the lab at UNC isn’t open this Friday. Therefore, an extra visit to UNC is in our very near future! No matter, though, because I will be coming bearing GIFTS!
Some friends of ours have a remarkable little girl named Braelyn who is 10 years old. Two of her younger siblings have cystic fibrosis just like Brett does. Their names are Luke and Lilya. Braelyn decided to find a way to do what she could to raise money and awareness for cystic fibrosis research. She makes and sells wonderful-smelling Christmas ornaments! The money from her ornament sales is donated to the
Cystic Fibrosis Foundation (CFF). Since 2008, she has raised over $2,000!
I wish this screen could be scratch and sniff!
Braelyn makes many different shapes of ornaments, but this year I asked her to whip up a personalized batch of gingerbread men – my personal favorite shape - for me to give to Brett’s plethora of therapists, nurses, doctors, dietician, and social workers for Christmas. Not only do they all work hard to give Brett the best care possible, I can tell he’s already got a special place in their hearts as well. It feels good to be able to donate to CFF and have a little something to show for it and give to the special people in his life.
I’ve printed up a little info about Braelyn and why the ornament is special, and I’m looking forward to playing Santa this week at UNC!
Click
here to visit Luke and Lilya's CarePages website.
Dear Reasoner Family,
ReplyDeleteAs the grandparents of Luke and Lilya, we share your cares and concerns for this disease. We hope and pray that find a cure for this very soon.
Our hopes thoughts and mostly our prayers are with you.
May God bless you all.
Craig and Dana Myers
Braelyn is an amazing big sister. Her love for her siblings ls a beacon. She is an inspiration and I can only imagine her amazing life walk.
ReplyDelete