Infusion Day

Brett had his IVIG infusion today at UNC. Brett's weight was UP today, to 20 pounds, 14 ounces.  He played most of the time and slept a little.

Everyone has their own TV

He was in good spirits and played most of the time, sleeping for about an hour. In total, we were there for 5 hours. Yesterday at Wake Forest Peds he got his 2 monthly Synagis injections - an immunization that is given to help protect him against RSV during the winter, which could be devastating to a CF patient. Although I haven't spoken directly with a doctor and haven't seen any actual numbers myself, I heard through the nurse grapevine that labs that were taken Wednesday looked fantastic. I'll probably get the (routine) throat swab results next week.

Pediatric Infusion Room at UNC 

We enjoyed playing Santa as we gave out the remainder of Braelyn's Christmas ornaments. All the recipients seemed to love them as well as the story behind them. Today was our LAST planned visit to UNC for 2010. Let's pray we don't see those folks again until January 5th!

Reading books