Another Day at UNC

Brett during his liver ultrasound - watching Curious George

Yesterday Brett had a good day - not very eventful, except for a liver ultrasound that was done to check for any problems since his liver enzymes were elevated. Thankfully, the ultrasound was completely normal so there does not appear to be any blockage or any bloodflow moving in the wrong direction. The broviac line is working fine and we are using it to administer the IV antibiotics. The cultures we took last Thursday from his throat have only grown haemophilus influenzae (or H. flu), which, despite the name, is a bacteria, not a virus. This bacteria has been found in healthy children as well as children with CF. We are still waiting on his cultures from Monday's bronchoscopy to grow. Unless it is something way different than H flu, though, it won't change the course of treatment. Since the remaining IV course can be administered at home by Rob and me, the only thing that is keeping us here right now is Brett body's inability to keep his blood oxygen saturation up into a satisfactory range without the assistance of oxygen. He is on only a small amount of flow (.3 liters), but when he is weaned down further or turned off, the sats dip. The doctor today said that 90% while sleeping was OK with her, so I really hope we will be able to be discharged tomorrow - Thursday. As for now, just another day waiting around at the hospital! Here's some pics from yesterday.


Me and Brett on the way to radiology

Sunset view from the 5th floor at UNC