Hospitalization #10 - Day 9

Fun with Daddy

 Brett has gained almost 200 grams a day since he has been admitted! When he came to clinic last Tuesday, he weighed 8.8 kilograms. Today he weighed 9.9 kilograms, so the therapies have been successful in that regard. In pounds, he went from 19lb 6 oz to 21 lb 9 oz. This is only his second day on full feeds and off TPN, though, so we still have yet to see whether he can continue the weight gain without the TPN.

Taking his Flovent

There was some talk about Brett going home today, but it was not meant to be. It appeared this morning he could be starting to not tolerate the full feeds (demonstrated by loose bowel movements which could suggest "dumping" the nutrients), but since this morning that hasn't happened again. Discharge takes a long time, and has to be coordinated perfectly when your little patient has to have medications at specified times - the home health company has to have them at the house, and you need time to be able to get home before the next scheduled medication.

What a big boy!!

 Another issue is that Brett's antibiotics were started at 2 am when he was admitted. Obviously, I'm not getting up at 2am to do an IV, so we have to systematically inch it back toward 10pm, 6am, and 2pm. The other one will probably be at 9:30am and 9:30pm. Also, since Brett's IgG level is already below his target of 500, he can get his infusion while we're still here tomorrow instead of having to come back next Tuesday. His GI doctor still wants to do an endoscopy,  but she wants to wait until at least next week to do it. So now the tentative plan is to stay the night, get the IgG infusion, and go home sometime tomorrow IF he doesn't continue dumping. Let's pray it really happens!