6/23 - update

So Brett had his second lumbar puncture today.  Yesterday they could not get any fluid after two tries.  Today it worked and the results were negative for meningitis.  He has had a problem with his broviac clogging and they removed it this evening.  They will wait 24 hours for any bacteria to get killed by the antibiotics and then put in a PICC line.  All of this will be done bedside, however, it will be completed by the surgical team.

His abdominal x-ray still does not look as good as it should.  There is not an issue with NEC anymore, but they are still a little concerned about the air in the wall of his intestines.  They are still taking x-rays every 24 hours and looking for improvement.  Once the x-rays are normal, they wait 10 days and then begin his feeds through the G-Tube.

We need to get him on feeding by mouth again because enzymes are so important for kids with CF.  Enzymes work best if taken orally.  The enzymes help him break down his food (even breast milk) so the nutrients will go in his body.  

He seems to be doing better, but the roller coaster ride of the newborn critical care center is very hilly.  Some days it is up and others it is down.  Please continue to pray for his health.