Happy Easter!Today we got to spend some time with Gantt. (all the above pictures are of Gantt) Brett contracted RSV virus and has been put in isolation with the other babies with the same thing. There are about 8 kids that have this virus and they have been separated from the other kids. Rob spent a little bit of time with Brett after scrubbing out and wearing the full get up. (mask, gloves, and gown)
Rob did change Gantt's diaper today. (no that is not photoshopped) Gantt is gaining weight and he is eating full meals every 3 hours. He actually gained almost 100 g in 48 hours! I hope you enjoy these pictures.
On a different note, we did get a diagnosis on Brett. He does have Cystic Fibrosis and we spent an hour or so with the pulmonary doctor discussing some of the things we need to think about. It is also great that we are so close to UNC because they are one of the leading hospitals in treating CF. We will also be testing Gantt for CF and the results will take just over a week.
They did tell us not to google cystic fibrosis and start reading everything because there is a lot of misinformation out there. The best place to go is here ----->Cystic Fibrosis Foundation - Home
It seems that Brett can have a "normal" life, but there may be some complications with his gut. The doctor seemed to think that he did not have that large of a percentage of his intestines removed. We were encouraged about this because one of the biggest issues with CF kids is getting good nutrition. Right now we have to wait 6 weeks or so for Brett to heal so he can have surgery again. This next surgery will be to reconnect his intestines. Once this happens, we will wait and see how he does. We are comforted in the fact that they told us we can put his crib together and he will make it home to be with us in a few months!
What a joy it is to have 3 wonderful boys!!!
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